Take One SMALL Step in Brampton and help support the Foundation for Prader-Willi Research. Organizers have promised a fun filled walk-a-thon at Chinguacousy Park between 10am and 1pm on the last Sunday in May (May 29th this year).
Prader–Willi syndrome (PWS) is a rare, complex genetic disorder that occurs in approximately 1 out of every 12,000-18,000 births (or around 2000 people in Canada). It affects males and females, all races and ethnicities with equal frequency and is recognized as the most common genetic cause of severe obesity. PWS causes a dysfunction of various bodily regulatory functions responsible for controlling hunger and satiety, temperature and pain regulation, metabolism and hormone balance, and a host of other functions. The most difficult symptom is an inability to feel full – people with PWS constantly feel that they are starving to death. There is currently no effective treatment. You can learn more about the disorder at the Foundation for Prader Willi Research.
The Foundation for Prader-Willi Research (FPWR) Canada is a registered national charity dedicated to eliminating the challenges of PWS through research. I am vice chair of the board for this organization. Together with sister organizations worldwide, we work to raise money that is used to fund research grants that investigate many different aspects of the disorder.